Offering hope to those on the path behind me

Category: My Story (Page 19 of 24)

The Fog on My Path

Today I was sorting through some old notebooks while packing.  I had to post this in case I can’t find the notebook again after the move (fingers crossed, I close in 18 days).

I’m not sure when I wrote this  (I have a feeling it was close to the time my cancer returned in 2010), but it spoke to me today, I hope it speaks to you…

The Fog on my Path

The journey to this place and time

has seemed to be an endless climb.

The path has had many turns and twists

more times than not, I was walking through a mist.

The mist turned into fog and haze

which made me feel lost in a maze.

On the days the fog was too thick to see

I wondered “God did you abandon me?”

The answer I got back was had to swallow

“NO” He answered “That’s when you chose not to follow.”

To follow God on His path is hard than it seems

I get lost along the way, following other’s dreams.

Finding the light and watching God lead

Made turning off the path seem silly indeed.

 

 

Anger – One of the 5 Stages of Grief

According to Greif.com there are 5 stages of grief: Denial, Anger, Bargaining, Depression and Acceptance.

While I have read about these stages, and knew it to be true in many regards, I thought I was going to skip over the ANGER.

But SURPRISE. There it is. It attacks you when you least expect it.

Even though the experts say that Anger may be directed at God or even the person who you lost. I knew that I was not angry at my husband. It was not his fault he got cancer. I knew I was not angry at God. I am a firm believer after fighting cancer for 13 years that God did not give me, or my husband cancer. In fact several years ago I wrote about God being like an Architect.

When reading about grief and thinking about anger, I did not think it would apply to me. After all, I did not know where I would direct my anger. Ha, listen to me, I seem to think that I have control over this crazy thing called grief.

Today I realized that I am angry. I’m angry at the doctor who never diagnosed my husband’s disease even though he saw him many times over the course of a year. I’m angry at the Insurance company that denied him service at MD Anderson even though he was responding positively to the clinical trial. I’m angry at the Hospice situation that we went through (everyone tells me how great Hospice is, but that was NOT our experience). I’m angry at some other smaller things that really don’t amount to much individually, but when piled upon all of the other things make me crazy.

I have never been one that liked confrontation. I am a people pleaser. I like happiness and people to be happy around me. So how do I deal with this anger that I have suddenly identified?

I guess this post is the first step. I have now identified it. I’ve put a name to it (the doctor, the insurance company, Hospice, there are a couple of others but they are too hard to describe in a short blog postreleasing-anger).

But I also know that the anger I have towards these identified entities has also caused me to be short with people and things that I have no reason to be angry with. A friend trying to be nice might say something that is meant to be encouraging but unknowingly rubs a nerve that I didn’t even know was exposed.

Next, I need to figure out the best way to release this anger. Some suggestions that I have found are:

  • Drawing/painting (I’m not good at either of these things and that would just frustrate me further)
  • Scribbling on paper and then tearing it up (I’m thinking more along the lines of scribbling and then burning the paper and the words)
  • Counting to 10 and taking deep breaths (this may work for the smaller things, but not sure that it will release the anger with the entities)
  • Exercise (while this has been a go to in the past, some of my anger that I’m noticing relates to the fact that I can’t exercise as easily as I used to due to my physical limitations from my hip surgery)
  • Kicking, yelling, screaming (I may try this, at least the yelling and screaming – I know it helped when my physical pain was off the charts, so maybe it would help with the anger too).

Obviously, these all share the same outcome. Let the anger out. Don’t keep it in. It is time to let it go. And if and when it returns, recognize it and deal with it so I don’t have raw, exposed nerves.

My take away from all of this: Recognition is the first step to dealing with and healing from the pain associated with the anger.

 

Counting Blessings Vs. Grief

Dear J.R.,

I wonder if you know how much I miss you.

Thanksgiving day will be 4 months since you’ve been gone. It doesn’t really feel like a festive occasion this year.

I see friends posting on Facebook everyday with their daily “Today I’m thankful for…..” post. I have not joined in. I find it hard to find a new thing everyday to be thankful for right now.

I am thankful for family, friends and sleep. But that only covers 3 days of thankfulness.

Each night I try to count my blessings (sometimes that is the only way I can get to sleep).

I’m so very thankful for the 23 plus years we had together. I’m thankful for the two beautiful daughters we raised together. I’m thankful for the love we shared and the life we had. We #BuiltaLifeTogether.

So many people say that it is hard to be sad when you count your blessings.

When grieving, I find this to be very untrue.

When I count my blessings, or the things I’m thankful for (since this is the month of Thanks) it does not lessen the grief and sadness I feel. But it does help me get through the day. It reminds me that I have a reason to get up, get dressed and get out and participate in life.

Life can still slap me in the face when I’m least expecting it. Like when a song comes on the radio that makes me think of you, or when I see something in the store and think you would like it. Or when I see a couple holding hands and want to reach out and hold your hand.

It is many small things that happen throughout the day that make me long to have a conversation with you and listen to your unique perspective. I still expect to hear your voice at times.

There are so many things I want to share with you. I wish you were here to see the house that I’m building. I wish you were here to see the Super Moon this week (it was always fun to stargaze with you and discuss the latest episode of Ancient Aliens). I wish you were here to see the Dallas Cowboys are finally in first place in the NFC East.

I’m trying hard to find small things to be thankful for everyday. There is always something to be thankful for. I try to find a reason to smile everyday as you asked me to – some days are harder than others.

I Love You. I Miss You. I’m doing my best to figure out this new life without you by my side.

Enduring the Pinktober Fest

enduiring-pinktober

As you might have guessed, Pinktober is not my favorite month. Every year when October rolls around we are inundated with Pink Ribbons and Facebook posts asking us to do something silly like posting the color of our underwear or other such foolishness.

I will admit for the first 7 years after my original diagnosis I was sucked into believing that it was all a good thing. I have tons of breast cancer awareness shirts, cups, mugs, wristbands, etc that I purchased over the years, or that others purchased for me.

I fell into the trap of thinking I had done everything right and that because of that I was GOOD. After 7 years, I had been lulled into believing that I HAD BEAT CANCER.

If you have read any of the previous posts, you know I did not BEAT CANCER.

what-stage-4-looked-like

In August 2011 I had surgery to repair my hip destroyed by metastatic breast cancer. This photo is in the rehab hospital. Note I’m sporting the Pinktober shirt.

Just as I celebrated 7 years of being cancer free, I got the phone call.

My journey took the Stage 4 Exit onto a new cancer highway.

Last week was my cancerversary for my stage 3 diagnosis 13 years ago. This week I can celebrate my Stage 4 cancerversary. The celebration is that I am still here to share my story. But it is a bittersweet celebration. One that I wish no one would have to celebrate. Continue reading

I’m OK (and that is OK)

im-okIt is OK to just be OK

The other day an acquaintance asked me how I was doing. If you know me at all, you know my standard answer to that question used to be Awesome!

Now when I’m asked, my answer is OK.

She looked surprised and said “that doesn’t sound good.”

My first thought as she seemed surprised with my answer was “How would you answer the question if your husband (and father) had just passed away 2 months ago?”

I’m not Awesome. I still cry for what seems like no reason. I am still adjusting to living without my best friend. In the past 2 months my life has completely changed. Some changes were expected (like my youngest daughter heading off to college), some were anticipated, but unexpected (like my husband and father passing away just 4 apart from one another).

I am learning how to live alone for the first time in over 24 years.

Cut me a break if my response is that I’m OK.

OK is pretty good right now.

If I answered honestly, you might not want to hear the dark details of the sleepless nights, or the trips to the store so I don’t feel alone. You don’t want to know that the smallest thing can make me cry…like hearing a song, or something I read, even a commercial for something that he hated or loved.

I know that I am here, he is gone and (I believe) there is something God has planned for me, but my life today is not Awesome. I am working towards it, and I want it to be Awesome, but right now I am OK with being OK.

We all see things differently. Allow me to experience my grief in my own way. Do not push me to grieve the way you think it should be done.

Do not push me to grieve longer, or to grieve less, or to grieve in any way that I am not comfortable. It’s mine and I will do it as it fits me.

This is my grief, and I am OK.

One day my answer may change to better, good, great….even Awesome.

But not today.

And that is OK!

 

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