Offering hope to those on the path behind me

Category: My Story (Page 22 of 24)

Treatment ended as abruptly as it started

My treatment ended as abruptly as it started. I finished chemo and radiation and now there was nothing left except a 5 year regimen of a daily dose of Tamoxifen.

What I wasn’t prepared for was the minor depression that was settling in. From October through June I had something to focus on. There were surgeries, treatment dates, and doctor visits. Something always to look forward to and know that I was DOING something to beat the cancer.

Now that all of these things were done, there was nothing to  concentrate on, nothing to look at and think “Here you go cancer, get out of my body.”

It took me a few months to realize that depression was setting in. I started to notice I was tired constantly. But that was because I just finished radiation. I started to notice that I had a lack of focus, that could be because of the drugs that I had poured into my body, or even the new one that I was taking daily.

I began to go back to a normal life, one that did not include daily radiation visits, or infusions of chemicals into my body every few weeks. There were follow up visits to the doctor, but that was all they were.

It wasn’t until I broached the subject with my doctor I found out how common it is for cancer patients to be depressed when treatmCancer came, I kicked it's A$$, and life was mine again.ent ends. As doctor’s are prone to do, the answer was another drug. I agreed to take the medication. I took the medication for the depression for a few months. It helped and I was able to wean off and get back to what life had to offer.

Soon we were back to life. My hair grew back. I continued to work. I helped my kids with homework. I watched soccer games and went to swim meets.

At some point during the 5 year daily regimen of taking Tamoxifen I began to feel like the Cancer was in the past. I had done everything the doctor had asked of me. And even started to believe that first voice again that maybe there had been a mistake. Maybe I didn’t really ever have Cancer. But if I did…Cancer came, I kicked it’s A$$ and life was mine again.

There was no need to worry about it coming back. Or was there?

 

Confetti, a Bell and a Certificate – Treatment is Finished

At the door to the infusion room there is a bell. I didn’t really notice it at first. Then, while I was sitting there with drugs dripping into my veins, someone rang the bell and the nurses threw confetti signifying they had finished their treatment.

I got to ring the bell. Eight total treatments from November to April. It was a small celebration, with confetti and  a certificate indicating my treatment was complete. OK. But what’s next?

After a few weeks I had my follow-up appointment with the doctor. For me, treatment was really complete yet. I still had a cycle of radiation to go. I met with the radiation oncologist, who just happened to be downstairs, and got my orders.

Before beginning radiation, I had to have my “pillow” made. So many new and unique experiences that unless you have had cancer you do not understand. The pillow has some sort of beads in it and you lie on it in just the right position. Somehow the pillow becomes a mold that allows you to stay in the same position for all of your treatments. Every day, they pull out your pillow and away you go watching the machine rotate around you and zapping radiation into targeted areas to kill any more cancer cells that might be left.

Radiation is a long process, but it does not take very long. That must sound strange. The actual radiation treatment only took about 10 minutes once I was on the table. But, it was 10 minutes every day for 20 days (no weekends).

I would schedule the radiation treatment either first thing in the morning or later in the afternoon depending on my schedule. Since the office was about half way between work and home it was very convenient (convenient – not really a word I thought I would ever use when talking about cancer).

The radiation does not have many immediate side effects. While I was getting my radiation treatment it was just another appointment on the calendar. However, as the radiation began to accumulate, I became more tired and it was harder to have energy for much more than getting up, going to work and driving home.

The most memorable experience of the radiation treatment was AFTER  it was completed. A few days after I received my last treatment I woke up and realized I felt like I had the worst sunburn I have ever had in my life (if you recall, my cancer is breast cancer, so putting on a bra was impossible, sorry guys if that is too much information).

Once again, God showed how he is in the small stuff. My radiation treatment ended just before out offices closed for a week for the July 4th holiday. I had a full week to sleep, recover and heal my burn before I had to return to work.

 

Confetti congrats

Another bell, another confetti celebration and another certificate of completion….But What Is Next?

 

My own Maundy Thursday

By January 2004 I had already had three chemo treatments and had five more to go. I was looking forward, not back. Chemo would be completed by sometime in April 2004 and we would move forward from there.

When you are a cancer patient (just like anything in life, really) you make a choice. Do I choose to move forward and continue the fight or do I  dwell in the ‘What if’s’ and dwell in the past. It is easy to dwell in the past and play the ‘what if’ game, but it is not productive. Maybe that is why people are always surprised with my attitude. Each morning I wake up I remind myself that I cannot change what happened yesterday I can only focus on today.

My treatment plan called for 4 treatments of Adraimycin/Cytoxan (A/C) and 4 treatments of Taxotere.  I had finished 3 treatments of the Red Devil as A/C is commonly referred to because of it’s bright red color.

I had my final A/C treatment in January with no complications. Whew. That is now behind me. What’s next?

As I have mentioned before each of hte treatment came about 3 weeks a part. This same schedule continued when I switched to Taxotere.

With no crazy adverse effects from the Taxotere (none that stand out in my mind at any rate), I was scheduled to finish my chemo treatments in April.

Thursday, April 8, 2004. Maundy Thursday or Holy Thursday. For those who may not know, that is the day the church recognizes the Last Supper. It is the Thursday before Good Friday and Easter.

I took this to be a good sign. It was my own personal Maundy Thursday. I had the Last Chemo and was looking forward to Monday where I would be celebrating new life.

 

Perfectionism is so 2015

I admit it. I have a problem with perfectionism.

No. I’m not perfect. I know that and I’m sure people around me know it too.

But for some reason, my head tells me if I can’t do it right, then don’t do it. I don’t want to fail. If I try and fail, then I won’t be perfect.

Sound familiar? Anyone? I’m sure I’m not alone in this, right?

The past few years I have learned to be much more forgiving…at least to those around me. Somehow I have figured out that others are not perfect and that putting that pressure on them made all of us fragile. Relationships can become quite strained when you expect those around you to be perfect. Especially your children and your spouse.

My relationship with my daughters has improved immeasurably (at least in my opinion) because I’m not showing them disappointment first. I am congratulating them on trying. Hopefully, as they keep trying they will continue to spread their wings and soar.

Somehow, however, I have failed to give myself that same kind of permission. I have slowly gotten a little better, but the reality is that I have not perfectly accepted that I am not perfect.perfect quote 12-24-15

The last half of 2015 has offered me a lot of reasons to step out of my comfort zone and try things.

As scary as that is, I am realizing that it is scarier to have not tried than to have tried and failed.

As I sit here on this beautiful Christmas Eve morning I offer myself a present for the new year: the gift of Failure.

I will choose each morning to reopen the gift and see what it will offer me.

 

New Christmas Tradition

We started a new Christmas tradition without even knowing it.

To this day I’m still amazed how things worked out. God’s handprints were in the details  (that is likely why I’m still here to share my story).

The chemo schedule worked out once again such that I only missed 2 days of work for my treatment. Working at a school district certainly had its advantages. My December treatment was scheduled for the 18th. That meant that the next two weeks I was off of work – yes, even administrators get the 2 weeks off at Christmas.

Having had no complications for the first 2 treatments, I was feeling confident that things were going to go well. My husband, as he always did, went with me to the infusion. Afterward, we decided to treat ourselves to a nice meal out and a little Christmas shopping while the girls were still in school. We went to Johnny Carino’s and had some really good Italian food.

All was well. We got home and settled in to watch Thursday night TV. Then Friday morning came. And it hit me. Sorry Johnny, but I haven’t been back since that day. I know it had nothing to do with the food itself, but the richness got to me on top of the chemo. I will spare you the gory details, but that was the only time I ever got sick during my treatments.  (I’m sure that if I hadn’t changed my diet to gluten-free, I would have made it back to the restaurant at some point).

My girls were 8 and 5 and did not understand truly what was going on. They knew mommy was sick and they were so sweet to snuggle with me on the couch. We had 2 weeks ahead of us to enjoy as a family.

When you are undergoing treatment for cancer, it is easier to see the real meaning of Christmas. It is not about the lights on the house and the perfect decorations. It is about sharing time with your family and making memories.Christmas Tradition

We started a new tradition that year at Christmas that we still enjoy to this day. Each of us received a new movie in our stockings. Stockings in our family are a huge deal. We love discovering all of the fun things that are in them. Finding a new movie was a huge hit.

The couch, the TV, popcorn and movies. It is the way we have spent Christmas day ever since. I can count on my kids (I keep calling them kids, but they are now 20 and 17, they will always be my kids) to let me know the DVD’s that are coming out around Christmas so that the stockings are filled with movies that will be enjoyed for days and years to come.

My favorite holiday movie is The Holiday.  What is yours?

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