Offering hope to those on the path behind me

Tag: cancer (Page 1 of 2)

Goodbye Ann…Another friend lost to Metastatic Breast Cancer

Beth, Cathy, Ann and KIm attending Art Bra Austin 2019
L to R: Beth, Cathy, Ann and, Kim at the BCRC Art Bra Austin 2019 Fundraiser

This week I learned a new term. Anticipatory Grief. You may have already determined that anticipatory grief occurs while a loved one is still alive, but their death is imminent. 

This would have been helpful information 4 years ago as we watched JR and my dad both slip away. It certainly helps me understand the anger I had during June and July 2016. 

I learned the term this week while attending an online Breast Cancer conference hosted by Living Beyond Breast Cancer. There was a session called “Coping with Collective Grief” and the speaker, Kelly Grosklags, spoke about this “new to me” term. 

It helped me understand my feelings this week (as well as those feelings from 4 years ago). You see, today we lost another to Metastatic Breast Cancer. A beautiful, fun, brilliant, witty woman gone too soon.

I met Ann while attending a support group for women with metastatic breast cancer at the Breast Cancer Resource Center.  She was everything I am not: outspoken and loud. Not in an obnoxious way.

She had a sharp wit and a sense of humor that you couldn’t help but love. After going to meetings for a few months I became friends with Ann, Beth, and Cathy. Sometimes we would go to lunch after a meeting, go out for drinks or just sit out on my patio and enjoy a beverage and snacks (pre-Covid). 

I loved talking with Ann, she had stories that could make your belly hurt from laughing. Or she could bring you to tears. 

We have known this day was coming ever since she decided her body was tired from treatments. But until last Tuesday I was still in denial. I had seen her a couple of times since March (on Zoom calls) and she was holding her own. 

But when the text came last week to come see her it seemed urgent. When we arrived she was in bed, no energy to get up and the spark in her eyes, while still there was just a little dimmer. 

Thankfully we were able to see her while she was still coherent enough to recognize us and even engage for a bit. And for that, I will be forever grateful. 

Having watched JR go through the process of dying, I knew when I left that her time here was short. And I was glad I had dropped what I was doing to go spend a few hours with Ann and my other “bosom buddies” Later that week we received an update on her caringbridge site that she was not receiving any more visitors and she was sleeping most of the time. 

This week I have been anxious every time I open my email. Anticipating the final journal entry. Today, it came.

You will be missed, Ann. I’m so glad I got to know you, even if it was through this damn thing we call metastatic breast cancer

Enduring the Pinktober Fest

enduiring-pinktober

As you might have guessed, Pinktober is not my favorite month. Every year when October rolls around we are inundated with Pink Ribbons and Facebook posts asking us to do something silly like posting the color of our underwear or other such foolishness.

I will admit for the first 7 years after my original diagnosis I was sucked into believing that it was all a good thing. I have tons of breast cancer awareness shirts, cups, mugs, wristbands, etc that I purchased over the years, or that others purchased for me.

I fell into the trap of thinking I had done everything right and that because of that I was GOOD. After 7 years, I had been lulled into believing that I HAD BEAT CANCER.

If you have read any of the previous posts, you know I did not BEAT CANCER.

what-stage-4-looked-like

In August 2011 I had surgery to repair my hip destroyed by metastatic breast cancer. This photo is in the rehab hospital. Note I’m sporting the Pinktober shirt.

Just as I celebrated 7 years of being cancer free, I got the phone call.

My journey took the Stage 4 Exit onto a new cancer highway.

Last week was my cancerversary for my stage 3 diagnosis 13 years ago. This week I can celebrate my Stage 4 cancerversary. The celebration is that I am still here to share my story. But it is a bittersweet celebration. One that I wish no one would have to celebrate. Continue reading

What’s Next…The never ending question when you are Stage 4

Now that the pain was under control and I was back to using a walker, it was time to figure out

What’s Next?

The first step was to determine what kind of treatment I would be using to keep this from spreading any further. My doctor told me (and seeing how it is now almost 5 years later and I’m here writing about this I believe him) “the good news is that it is only in your bones.” Meaning, as long as it stays only in the bones I have a much better prognosis.

The first line of defense offered was Arimidex. That sounds easy. Take a pill once a day. There was only one problem, Arimidex is only available to use if you are postmenopausal. At the time I was 44. My mother had a hysterectomy at 40 and my grandmother was deceased. We had no idea when I would be in menopause based on family history. A simple blood test showed that I was not even pre-menopausal. feet first

The doctor, my husband and I discussed the options. There were two: have a hysterectomy or be subjected to a monthly shot that would mimic menopause in my body. When I asked how we would know when I actually went into menopause, and therefore we could stop the shots, the answer “we won’t know” was not what I wanted to hear. Armed with this information, I turned to my OB/GYN. He delivered my youngest child, he found the original tumor during an exam, he was someone I knew could help me make this decision.

Decision: Do I jump in feet first or dip my toes and test the waters?

If you don’t believe that there are doctors that care, I’m here to tell you there are. A long-term relationship with an incredibly caring doctor is an amazing thing. When I called my gynecologist and explained the situation he immediately said he would call my oncologist directly and discuss the options. He called me back in less than 30 minutes having talked to the oncologist and giving me his best recommendation.

Since I was 44, did not want any more children, and breast cancer likes to spread to the ovaries, we came to the conclusion that the best line of defense was to have a complete hysterectomy.

Another surgery on the horizon.

Surgery, Round 2…A Plan for Chemo

The world continued around me even though it felt like mine was falling a part.

My children still had to get up and go to school. I still had a job (that one that I just started in August). I had to continue to get up out of bed each morning and figure out how to make it through the day.

In 2003, my girls were 8 and 5, respectively. They did not understand what was going on with mom. They just knew that I was home and that climbing on me was uncomfortable for me, but as any mom will attest, the best medicine is a good snuggle from her kids.

Somehow I made it through the weekend and Wednesday came. It was time to go back to the hospital for round 2 of the lumpectomy. In addition to trying to get clear margins around the tumor, the surgeon was also going to remove some lymph nodes to determine if the cancer had gone beyond the breast. Continue reading

It’s Like that game…

Do you remember the game Perfection?

It was one of my favorites as a kid. I was pretty good at it. There were about 25 pieces that you had to put into the correct holes in the board. Even though you played against other players, you were really playing against the clock. There was a 60 second timer. If you didn’t get the pieces in the correct holes and the timer went off, the board popped up and spit the pieces in the air.

TimerIt always seemed like the timer got louder and louder as it counted down to Zero.

Today was one of those days that a #Lifer feels like the timer is getting louder and louder and the clock is counting down to zero. Continue reading

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