Offering hope to those on the path behind me

Tag: #metastaticbreastcancer (Page 5 of 5)

It’s been a good run Capecitabine -thanks for the 7 plus years – It’s time to take a new path

Well, as the saying goes…all good things must come to an end. I have been taking Capecitabine for over 7 years. It has helped keep my #stage4breastcancer stable…

Until this summer when I had what my doctor and I referred to as a bump in the road. For the first time in 7 years, I had a spot show up on my scans in May. I received radiation and then we waited.

In late October I had scans again. I usually get a little anxious around scans, because, well, Stage 4 Breast Cancer. But this time the anxiety was just a little higher. I was waiting to see if the spot in May really was just a bump in the road, or whether it was a roadblock and the Capecitabine was not doing its job anymore.

The results are back. No pun intended…ok slight pun intended. There were a few more spots showing on my spine. The good news, I have a high pain tolerance and I am not feeling any worse physically as a result of the new spots.

The bad news is now it is finally time for me to say goodbye to Capecitabine and find a new treatment to keep this stupid cancer in its place.

On the more good news side of things, because I have been on one therapy for so long, there are lots of new drugs available to try. I am reminded of when I was originally diagnosed in 2010. Capecitabine was my 3rd line of treatment before we were finally able to see stable scans.

So if at first you don’t succeed, try try again. My mindset right now is that if I could get 7 years from one treatment – which in the #metastaticbc world is amazing – why can’t I get 7 or more years from the next line of treatment. It may be some trial and error like it was in the beginning but I am willing to take those chances.

After all, I have a trip to Greece planned for next year and I don’t plan on missing it!

Scanxiety – It is Real

I have scans coming up on Monday. These will be the first scans since my little “bump in the road” in June that caused me to have 10 shots of radiation to my spine in July.

I have mentioned before that scanxiety is real. I’ve lived on this roller coaster for 9 years. Until June, I had a nice long 7 year run with my friend “stable.”

During that those 7 years, I had scans every 4-5 months or about 3x a year. I had scanxiety, but it didn’t last long. Usually, I would get anxious about a day before and stay that way for a few days after – until I realized that the doctor wasn’t going to call, or I was able to get online and read the scan reports for myself and see the word “stable” at the bottom.

I had gotten really good at leaving the scanxiety behind and not letting it take over more than a few days and most of my friends didn’t even know when I was having scans. After all I didn’t want to be “that person” – you know the one that can only talk about their cancer.

This time is different. I started recognizing the signs of my scanxiety earlier than usual. Because after 7 years of stable, I did have that “bump in the road”. What if that bump becomes a pothole? What if they find another spot? What if it wasn’t just an anomaly?

My oncologist assures me that there are a lot of treatments out there that are available to me if we need to change my course of treatment. After all 7 years on one medication in the metastatic world is an anomaly all of its own.

So for the next few days, I’m going to try to not think about Monday morning and what the scans might show. My favorite youngest daughter will be home for the weekend and I plan to enjoy spending time with her.

I have been catching up on Gray’s Anatomy lately – which honestly as a cancer patient I really see all the flaws, but I watch it anyway. There was an episode where Catherine was talking to Bailey about living with cancer and always living in fear. At the end of the episode Catherine, Richard, Bailey, and Ben are riding in a limousine drinking champagne (or bubbly water for Richard) and eating greasy burgers. She tells them that is the way she wants to celebrate every scan – good or bad – from here on out. I LOVE THIS!

So who wants to go for a limo ride on Monday? The results will be what they will be, good or bad, nothing I can do about them now – I will just try my best to live beyond the scanxiety.

Newer posts »

© 2026 BuiltaLife

Theme by Anders NorenUp ↑